간질아동의 삶의 질에 대한 부모의 인식

The Parents' Perception on Quality of Life of their Epileptic Children

Purpose & Method: The purpose of this study was to investigate the parents' perception on the quality of life of their epileptic children. Subjects were parents (n=81) of epileptic children between 2 and 21 years who had been diagnosed and treated for epilepsy for at least 6 months. Parents were given a self-report of quality of life questionnaires developed by Camfield, Breau, & Camfield(2001) during their child's clinic visit. Result: The mean subscores of QOL(1-4 scale) were, 3.47 (physical health), 3.67(personal relationship), 3.30(social activity), 2.88(academic accomplishment), 3.14(self-respect), 3.28(hope), and 2.89 (family activity) and the overall score of QOL was 4.33 on a 1-6 scale. Conclusion: The result of this study suggested that parents of epileptic children perceived that the level of QOL of their children was fairly good. Variables of types of seizure, recent episode of seizure, duration of treatment, and the number of antiepileptic medication were significantly affecting parents' perception of QOL of their epileptic children.