중증장애아 부모의 삶에서 나타난 여가제약

본 연구의 목적은 장애자녀를 둔 부모가 그들의 삶에서 여가를 어떻게 이해하고 있으며, 여가의 제약적 상황들을 알아보고자 한다. 특히 장애아 부모의 생활 전반에서 일상적 부모 역할 수행과 경험, 자녀의 교육, 친구들과의 만남 등 그들의 생활에서의 여가 제약적 요소를 알아보았다. 연구대상은 중증장애아 부모를 대상으로 연구를 실시하였으며 어머니 4명, 아버지 2명으로 선정하였다. 2007년 10월 6일 부터 12월 22일까지 격주로 심층인터뷰를 실시하였다. 전사한 내용을 개념화 한 결과 74개의 개념들이 나왔고, 14개의 하위 범주와 4개의 상위범주로 나눌 수 있으며 연구결과, 남과 다른 아이, 숨 막히는 나의 일상, 내생활의 시련과 변화, 현실적 한계의 4가지로 나타났다. 장애아 부모의 삶은 아이로 인하여 출발하고 아이의 교육문제, 치료문제, 여가 참여의 기회부족, 여가시간 확보 부분이 크게 작용하였다. 자녀의 치료비용문제와 프로그램의 부족, 프로그램에서의 보조인이 부족하게 나왔으며 여가참여시 오랜 친구 보다는 같은 상황의 엄마들과의 만남이 편했고, 장애자녀를 믿고 맡길 수 있는 보조자의 부족하였다. 이러한 점들이 확보된다면 제약적 요소를 감소시키는데 큰 역할을 할 것이다.

The purpose of this study was to find out the limited situation in leisure for parents of disabled child and how they understand leisure itself in those situation. Especially, this study focused on various elements that cause leisure constraints of parents for disabled child in normal behaviors such as meeting with friends, children`s education and performance of parent`s role and experience etc. The participants of this study was parents who raise severely disabled child. Four mothers and two fathers were selected as participants of this study. In-depth interview was executed on Monday, Thursday and Saturday biweekly from October 6th of 2007 to December 22nd of 2007. According to the final conceptualizing the printed data, total 74 concepts were deduced and these concepts were classified into 14 subsidiary categories and 4 primary categories. As a result of the study, 4 elements such as difference of my child with other children, suffocation my life and ordeal and change of my living, realistic limitation were resulted. we could see the fact that parents of disabled child, as our research participants, start their life from their child and collide with educational problem, medical treatment matter and being in troubled situation that they couldn`t ease their stress properly. They don`t have enough chance even though they want to participate leisure and they mainly confront problem of time procuring to enjoy leisure since they always bring their disabled child for medical treatment. And, cost for medical treatment is also stressful for them, the lack of understanding for disabled and lack of assistant during program participation in social-welfare center also influence on leisure participation. In matter of colleagues for leisure participation, they feel more comfortable with parents of disabled child than old friends and spend their most of leisure with them. Moreover, most of parents for disabled child indicated that they need responsible assistant to take care of their children in ever moment. If these assistants is fully procured, it will be very helpful to reduce elements of leisure constraints for parent of disabled child.